Fun With Junk E-Mail
Jul 28th
Twitter Weekly Updates for 2010-07-25
Jul 25th
been busy sleeping lots, narcolepsy sucks sometimes.be back 2 tweeting when I can stay awake longer than enough time 2 take care of family # 1 quick story: gave 6 yr old clam chowder today, told her it was cheesy potato soup with chicken, and she loved it. yep, score 1 pt for me! # [...]
Twitter Weekly Updates for 2010-07-18
Jul 18th
good evening! hubby is being horrible to me! I try to lose weight and he just brought out a mocha coffee smoothie # you know… made with vanilla ice cream, chocolate sauce, whole milk and coffee. its sooo good though # hubby just asked… "hey did we have dinner tonight?" … oops, no we …
Another Steroid Taper!
Jul 12th
Hello everyone! I have great news to report! My blood work results came back with positive results! We are focusing in on C-3, C-4 and DNA. Nothing has changed since my last lab work, meaning my numbers have not gotten better nor have they gotten worse. They are just hanging out at the border, but [...]
Twitter Weekly Updates for 2010-07-11
Jul 11th
http://tweetphoto.com/30896257 @legalupus adorable photo! # back pain level through the roof!
# exhausted. sore. ouch. Lexi took a 2 hour nap yesterday so she was up until 3am & ended up sleeping in our bed. slept horrible, feel crappy # oooooh gosh, 4 yr old is on the "its not fair" kick lately. She [...]
Twitter Weekly Updates for 2010-07-04
Jul 4th
haha! daughter just said, "Its so nice that you share your bedroom with daddy" # I'm about to pee my pants, LOL! # blogging & waiting for pain meds to kick in for this stabbing back pain # it takes forever… like 2 days… for me to write a blog most of the time b/c [...]
Explaining Lupus To My Daughters
Jun 30th
How do you explain what lupus is to a child? My daughters are always asking me questions about how I’m feeling because they know that I am not healthy, and their questions are usually easy to answer. Most of the time they are asking me if my back hurts or if I am feeling tired. [...]


